Ontario Autism Program Changes: Connections for Students

IBI last day

My son on his last day of IBI Therapy, June 2016

Our Experience with the “Connections for Students” Program

At the end of 2015, the supervisor at my son’s IBI Autism Therapy indicated he had nearly completed the 5 levels of school readiness goals* they were working on with him. He was attending IBI therapy for 3 full days a week, and enjoying Senior Kindergarten 2 days a week.  He was doing well at school and had been going to a similar ECE program of one kind or another since he was 18 months old due to his communication and social delays being identified early. He seemed ready to be at school more and at therapy less.

In January of 2016, we began the “Connections for Students” program, a 12 month-long transition from IBI therapy into full-time school.

Every month our transition team met at the school. The team was made up of my son’s IBI Supervisor, myself, the school Principal, the Autism Specialist from the School Board, the Spec. Ed. Teacher, the ECE in SK and later the EAs from Grade 1 as well as the school board SLP. The classroom teacher was able to ask questions and get more support and learn about strategies that work for my son. The IBI Supervisor would help them adapt systems my son was familiar with from therapy (such as working through a folder of worksheets or other independent activities) and use PECS and visual schedules to help him through school day transitions and classroom expectations. They worked to build social and communication goals into his IEP. They identified specialized equipment needs.

Not only were we transitioning from IBI to school, but we also decided to transfer school boards for the start of Grade 1. In our case, we were transferring from our local public school to the local Catholic school.

The Connections program brought together the public and Catholic board Autism Specialists. The Spec. Ed. Teacher from the Catholic school was able to come observe my son in his Kindergarten class and speak with the teacher and ECE.

Our Kindergarten teacher at the public school was caring, but despite teaching for over 20 years, was definitely new to the world of autism. The Connections program brought her much-needed support. At the public school, I found that the Connections team was so important for helping the teacher and ECE with a full and busy Kindergarten classroom feel less overwhelmed and better able to cope with meeting my son’s needs. I had the impression they felt very stretched thin and were just trying to get through the day.  Every bit of support was needed.

As we started Grade 1 at the Catholic school, I noticed a shift. The Connections team was working entirely for my child. At every meeting, the teacher would bring her questions which were always started with ‘how can I best support him with ___?’ and the team would give suggestions and provide resources. Between meetings the teacher would try out the suggestions and come back to the next meeting to share what was working and what needed tweaking. They would share successes and build on them.

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Relaxing in the Sensory Room at School

Grade 1 was a fantastic experience for my son and I. My son is now in Grade 3 where he continues to thrive. His school is excellent at identifying his needs and picking out goals to continue to help him with his social and communication delays.

I found that the Connections process was vital and extremely supportive. I never had to fight for an IEP or beg for EA support. The Connections program seemed to make both schools take his needs VERY seriously. Currently, it feels like we are on auto-pilot, naturally flowing from year to year with minor tweaks and adjustments to the IEP as needed. I absolutely believe that IBI Therapy and a transition to school via Connections gave my son the foundation he needed for school success.

At our IBI discharge meeting in early 2016, I was dismayed to learn that my son had only completed the first 3 levels of the IBI school readiness goals. At the time, all children were being pushed out of IBI due to the then Liberal Provincial Government’s age cut off set at 5. As we were already transitioning to school and had the support of Connections in place, I didn’t fight the discharge (but I did fight the government on behalf of Ontario’s children).

In the end, because of Connections, my son has continued to achieve the goals of levels 4 & 5 (we built them into his IEP). Instead of completing these goals at IBI therapy, he completed them in a more natural learning environment alongside his neurotypical peers at school. He is reading at Grade level, excelling at math. He has friends he looks forward to playing with at recess. He hops on the bus happily each morning, is surrounded by love and support at his school, and happily comes home each day to put on his Mario onesie and play Super Mario games.

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My silly Mario!

Changes to the Ontario Autism Plan

Currently, in Ontario, families with children receiving government-funded IBI therapy have been told that their funding is ending abruptly as of April 1st. Some will lose their therapy as soon as the end of March, others have been able to extend their existing contracts by another month or two.  These children will be leaving therapy centers and heading to school full-time without the benefit of a carefully planned and supported transition.

As schools have already allocated EA supports for the school year (and there is a hiring freeze), children will be coming to schools that are simply not ready to provide them the support they need for success. Children coming to school without the necessary therapy or school resources face potential trauma and exclusion from school.

My son counts as a child on the Ontario Autism Plan’s waitlist. When the previous government reversed their terrible decision to cut off therapy to children over 5, my son’s name went back on the list.  He had neared the top of the list last August for an evaluation to see what level of support he needed (if any). Thanks to a secret freeze, his name was never called before the new Ontario Autism Plan was announced.

Under the new plan, some time in the next 19 months, his name will come up and we will receive funding based on his age and our low-income level.  Meanwhile, children who’ve never received intensive levels of therapy won’t receive enough funding to cover the actual costs of the therapy they need. The school readiness skills my son learned will be inaccessible as the cost of intensive therapy will be affordable only to the extremely wealthy. The new plan is not based on the actual needs of the child at all, instead it uses age and income to determine how much (if any) financial support the Ontario government will provide.

In a worrying move, the Connections for Students program information has been removed from the Ministry of Education website. From Autism Ontario’s website, you can still read about the Connections for Students program here:

Advocating for Children with PC MPP Amy Fee and PC MP Erin O’Toole

It is my sincerest hope that the government pause and reconsider its new Ontario Autism Plan. Ontario must have a needs based system of funding that takes the child’s actual therapy needs into account.  As the April 1st deadline looms ever closer while the Minister of Community and Social Services vows to not back down, I must insist that at the very least, the children currently receiving therapy be given a proper and supportive transition into the school system.

-Jennifer Beckett

Jennifer is a mother of two, living in the Waterloo Region. When not protesting outside of PC MPP Amy Fee’s office, she works as a Developmental Support Worker for adults with disabilities.

*5 levels of ABLLS (Assessment of Basic Language and Learning Skills)

 

Dream Day Vacay Update

Family Channel shared the short video they made to sum up our amazing day in PEI.

Thank you to all who voted to make our Dream Day Vacay a reality!


-Jennpup

Lucky Ontario family enjoys free – but short – fun-packed P.E.I. vacation | The Guardian

It was “Anne” day like no other for the Beckett family. Chris and Jenn Beckett of Waterloo, Ont., and the couple’s children, Delphine, 14, and Quincy, 8, packed a full Anne of Green Gables-themed Tuesday together on Prince Edward…

Source: Lucky Ontario family enjoys free – but short – fun-packed P.E.I. vacation | The Guardian

Thank you!

Thank you to everyone who voted for us to go to PEI with the Family Channel’s Dream Day Vacay Contest!! We are so appreciative!!

Now we wait… ❤

UPDATE: WE WON!  Thank you to ALL who voted! We had the most wonderful time on our PEI Dream Day Vacay!

Thank you to Family Channel and to Prince Edward Island! Local businesses rolled out the red carpet to welcome us!

Thank you to the Confederation Centre of the Arts for comped tickets and a meet and greet with the Company of the Anne of Green Gables Musical on stage, the Holman Grand Hotel who upgraded our room to a harbour view suite, the Prince Edward Island Preserve Company for a private lunch room, passes to the Butterfly House and for looking after the Family Channel’s Dream Day Vacay production team, the drivers, video crew, Mavor’s Restaurant, COWS Queen Street, PEI Guardian Newspaper, Air Canada and West Jet.

Family Channel made every moment of our big day so special.  We are forever grateful!

Our trip segment should air on August 13th, and a longer format video will be available on Family Channel’s social media outlets.

XOXO,
-Jennpup

THANK YOU

Please Vote for My Family

A few weeks ago we spotted the “Dream Day Vacay” contest hosted by Family.ca. The contest asked for a written submission by our children sharing why our family deserves to win a summer day (24hr) vacation to anywhere in Canada… the prize is worth up to $10,000 and makes that dream vacation come true! Plus, they will film the day so there will be a video memory to treasure.

We have been dreaming up a way to get to PEI and see the “Anne” sites and also see our local Kitchener-Waterloo star AJ Bridel as Anne in the Charlottetown Anne of Green Gables Musical, so we submitted our entry.  We have not been able to go on any big family vacations since my son was diagnosed with autism at 2, but if you know me, you know I am resourceful!

We were so surprised to find out WE MADE IT to the TOP 5 FINALISTS!!!!!!  

But, in order to win, we had to make a 45 second video AND Our Video Has to Get the Most Votes… So, We Need Your Help!

PLEASE TAKE A MOMENT TO VOTE FOR OUR VIDEO

The Voting begins Monday, June 25 at 10am ET and ends on Monday, July 9, 2018 at 10am ET over here on Family.ca.  Clearly, I am not a professional videographer, but we did our best in a tight time frame and the video was made with a lot of love. ❤

Here’s the original Video we submitted… The link for voting is below.


Vote here: Family.ca/contests

Here’s an Eventbrite Event I created so you can easily add a voting reminder to your calendar (it is a daily vote). Thank you! If you can vote daily or as often as you remember, it will really help!

Up to 4 members per Canadian household (all ages, or 13+ in QC) with unique email addresses can vote per day!  Rules: http://promo.family.ca/contests/dream-day-vacay/voting-rules.php

When you vote, YOU get a chance to win a
$500 Transat Travel Gift Card!
transat card

successWhen you successfully submit your vote, you will get a SUCCESS
screen (see the sample image above) – if  you don’t, please resubmit!

I don’t know what the outcome of the contest will be, but THANK YOU for being a part of the FUN!! =)  I’ll keep you posted!

❤ ❤ ❤ 
– The Beckett Family of Waterloo, ON

P.S. Family.ca did not sponsor this post, nor am I affiliated with them in any way.

vote for us please u could win

Adventures at Great Wolf Lodge, Niagara Falls, Ontario

32aWhen we left Great Wolf Lodge Niagara Falls, we had to literally peel my son’s fingers off of the door as he kicked and screamed. Needless, to say, he LOVED every minute and never wanted to leave. This was our first visit, and I want to share with you what we learned, what we loved and why we’ll be returning again as soon as possible!

To Paw Pass or Not to Paw Pass?

For first-timers I highly recommend the Paw Pass!  For $64.99 plus tax per kid, you get:

  • One MagiQuest game
  • One MagiQuest classic wand or classic topper
  • One quarter pound of fudge
  • One animal from our Great Wolf Stuffing Station (outfit not included)
  • One 5×7 Paw Prints water park action photo
  • 20 Paw Points and game card for Northern Lights Arcade
  • One gift at Scooops Kid Spa
  • Two games of bowling at Ten Paw Alley or one game at Wacky Wilderness Mini Golf
  • Two Great Wolf Kids activities in Cub Club
  • One pair of wolf ears

We did everything on the list except for the activities at the Cub Club.  The kids loved getting their wolf ears, their stuffed wolf (just like at Build-A-Bear), and their wands for the MagiQuest. I upgraded the Paw Prints photo for about $6 we got a printed picture of our family going over the Falls in a barrel. We have very few family pictures and I appreciate the kitsch of this souvenir.

Meal Plan or Bring Your Own?

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Dinner Buffet

Our package included the meal plan and I loved the breakfast and dinner buffets. There were lots of choices and my picky eaters were all happy. Niagara Wine samples came to the table (SCORE!) and as it was my daughter’s birthday, she received a special dessert and a birthday song from wait staff ending with a wolf howl! So fun!

Check out the video of the birthday song: Great Wolf Lodge Birthday Surprise

Lunch choices were ‘okay’. We could choose from a pizza slice, chips and pop; or a hot dog or burger w/fries and a pop.  Not as awesome as the buffet, but it was quick enough and let us get back to the more important task of enjoying the water park.

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Kitchenette

Next time I will consider bringing more food and possibly not getting the meal plan, it is certainly possible to make do without it, but I also really enjoyed the buffets!

The room had a mini-fridge and microwave oven, coffee maker and sink, so we could definitely have made do while in our room. No microwave popcorn is allowed to be popped in the hotel rooms – there are big warning labels on the microwave ovens. I brought snacks, chips, candy, and bottled water for the room.

Standard, Themed, or Premium Room?

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KidCabin TV bunk bed and single bed

Our room was a themed KidCabin Suite. The kids enjoyed the bunk bed room of their own. My son loved sleeping in the top bunk. My daughter turned 13 on the trip and found the beds very uncomfortable. Next time I would double a mattress for her (they were thinner than a standard mattress) and there were three beds in the suite and only two kids.

We would have been just as happy in a standard “Family Fireplace Suite” as we all really enjoyed the fireplace and would pay a little more for that perk (we visited in January and it was so nice to warm up by the fire and also to dry our towels). My daughter would’ve been more comfortable in a regular bed and would happily share with her brother.

If you have no budget, consider a premium suite. I’d love to try the loft fireplace suite. This would be great to book at Christmas as the room holds up to 8 people and Santa can bring presents to the fireplace! Some of the premium rooms come with dedicated parking right outside your suite so it is easier to load/unload.

The Waterpark!

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Massive Water Park – so much to do!

We have been to the Fallsview Indoor Waterpark in Niagara Falls twice thanks to Autism Ontario attending in the Winter and were rather disappointed both times. My kids are not thrill seekers and they only enjoyed the wave pool there and unfortunately as the day progresses the water park gets colder and colder as patrons go outside to the heated outdoor space letting cold air continually blast into the water park.

We were pleasantly surprised with Great Wolf Lodge as the temperature was nice and warm and stayed warm the whole time we were there. The water park had smaller water slides for young kids or ‘chickens’ like my two. They loved the lazy river (I think half of our day was spent in the lazy river)! The wave pool was a hit and they also loved the smaller swimming pool with basketball nets around the sides. It was easy to access self serve life vests. Heated towels were available and there were lockers for rent. On our second day, we remained at the water park after checking out from our hotel room, so we rented a locker. The locker was about $20 and when we returned our key we had the option to receive the key back or pick a wolf stuffed animal (my daughter chose the wolf).

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Bonus – they have a Swimsuit “Dryer” – spin cycle that gets most of the wet out!

One night or more?

For the budget conscious, you can get a lot of fun out of a one night stay.  If your room is not ready at your 1pm check in time, you can access the water park already!  And you have water park privileges for your check out day as well, so you can stay as long as the water park is open! My hope next time is that we book at least 2 nights as there is so much fun to be had and it would have been a more relaxed pace for squeezing in all of the fun activities.

The Happiest Place in Canada?

30We used to save up for Disney, the happiest place on earth for me and so many others – but now, in less than 2 hours with no border crossing, our family has found our new ‘happiest place’ and it’s IN CANADA. To celebrate #Canada150 a lot of bloggers are urging Canadians to make Canadian destinations a priority this year, so we will definitely be spending our vacation dollars in Canada and as often as possible, at Great Wolf Lodge in Niagara Falls, Ontario.

Check out all of my Great Wolf Lodge Niagara Falls videos on YouTube here:
https://www.youtube.com/playlist?list=PL8kbJAZWbYm80uhs7pibCfBAW1eXnuG_w

Ready to book?

NEW!!  Enter to WIN here, ends May 24 2017: 
http://blog.parentlifenetwork.com/great-wolf-lodge-for-the-kid-in-all-of-us/

Discounts here:

Great Wolf Lodge Official Website Deals: https://www.greatwolf.com/niagara/deals

Entertain Kids on a Dime posts monthly deals, here are the APRIL 2017 ones:
http://entertainkidsonadime.com/2017/04/05/great-wolf-lodge-april-deals/  

cropped-access-2-logo-2014-eng-tageline-e1402684890727Special Needs Families! Did you know your Easter Seals Access 2 Entertainment card gets you a discount to Great Wolf Lodge? Scroll to the very bottom: http://www.access2card.ca/onattractions/

This Review is not an #Ad. It is my own opinion based on a stay my partner WON from CHYM-FM in Kitchener (Thank you for making me the #BestMomEver ).  

The World Needs YOUR Family

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Comedian, actress and YouTube entertainer, Lilly Singh, inspires 20,000 attendees at the inaugural WE Day Family in Toronto at the Air Canada Centre on October 19, 2016. Photo Credit: Maria Gagliardi for WE Day

Last year, I read Craig & Marc Kielburger’s book The World Needs Your Kid: How to Raise Children Who Care and Contribute and was inspired to help my children find their own ways to give back in our community.  Then in April of 2016, Ontario announced a cut to services for children with Autism over the age of 5 (a decision which did not impact my son with Autism, but greatly impacted his same age peers), and suddenly, my daughter and I were off and running. We marched in a rally in our hometown, headed to Queen’s Park for a protest and attended Question Period, and we helped organize a small protest at a local MPP’s office. We engaged on social media (#AutismDoesntEndAt5), posted signs, printed and distributed flyers in parking lots along with many other families across the Province. Thankfully, the government reversed its decision, but for our family, teaching our daughter that she has a voice and can use it, was the best outcome.

Craig  and Marc Kielburger were raised in a family who practiced seeing the world through a lens where they were active participants in making the world a better place. At a young age they were moved to create Free the Children (now WE.org) and worked tirelessly to create a world where child slavery could be a thing of the past. Over the years, their effort has morphed into the WE movement. Children all over the world earn their way to attend WE Day events by fundraising and participating in volunteer projects and initiatives.

The first ever WE Day Family!

Many local school children participate in WE Day clubs and volunteer to earn their ticket to WE Day. There they are inspired to do more and find their own way to change the world. Kids come home from WE Day pumped up and excited, and they bring this enthusiasm home to their families. Families were looking for direction and ways to support their children and get involved.  This was the inspiration for the first ever WE Day Family event, held in Toronto on October 19th, 2016.

My daughter and I were honoured to join over 20,000 people at the Air Canada Centre where we were treated to inspirational talks from speakers such as Chris Hadfield, Rick Hansen, Nelly Furtado, Paula Abdul, Lilly Singh and music from The Barenaked Ladies, Gord Downie and Hedley.

WE Were Inspired to Spread #GirlLove

Lilly Singh (aka YouTube sensation IISuperwomanII) shared her #GirlLove movement and the Rafiki bracelet she created while visiting Kenya on a WE Villages trip. Sales of her GirlLove Rafiki bracelets help girls in Kenya access primary education. Lilly wants to end ‘girl-on-girl hate’ and spread #GirlLove!

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Rafiki bracelets are handmade by women in Kenya! Purchasing Rafiki bracelets through the ME to WE store helps a variety of causes such as access to clean water!
newrafikiwaterMy daughter, was inspired to help communities access clean water and proudly purchased a WE GIVE CLEAN WATER Rafiki bracelet. She also picked up a #GirlLove Rafiki bracelet!
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WE were Moved to Tears

Gord Downie is lending his voice to furthering the cause of the Reconciliation movement in Canada. Gord delivered an emotional rendition of “The Stranger” from his Secret Path concept album/Graphic novel collaboration with Jeff Lemire.  Gord sang of the tragic death of Chanie Wenjack, who died while fleeing a residential school and attempting to walk to his home (not knowing it was over 400 miles away). Gord walked the stage as if Chanie, falling to the stage floor – a move that left many of us in tears. After the song, Gord was joined on stage by Chanie’s sister Pearl Wenjack, who sang a heart wrenching song. Although Chanie died 50 years ago today (Oct. 22, 1966), his sister’s ever present pain was evident in her voice.

TAKE ACTION: Tune in and watch as a family, then start the difficult conversation of Reconciliation in your home. The Secret Path will be broadcast by CBC in an hour-long commercial-free television special on Sunday, October 23, 2016, at 9pm (9:30 NT).

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Gord Downie, Mike Downie, Pearl Wenjack and William Wenjack inspire 20,000 attendees at the inaugural WE Day Family in Toronto at the Air Canada Centre on October 19, 2016. Photo Credit: Maria Gagliardi for WE Day

WE Were Encouraged to Aim For The Stars

Astronaut Chris Hadfield joined the Barenaked Ladies to play his guitar and sing along with “If I Had A Million Dollars”, then joined a room full of children and Mom Bloggers for an inspiring Q&A. When he was little, there was no such thing as a Canadian Astronaut, but he didn’t let that stop him. He dreamed big and achieved his goal through hard work and determination.

His time in space inspired his commitment to WE.org – having a space-eye view of Earth, taught him the “WEness” of us all. WE are all in this together, and WE can make a difference to the lives of others around the globe.

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Juno and MMVA Award-winning alternative rock band, Barenaked Ladies, and astronaut, author, professor, musician, first Canadian to walk in space and command a spaceship, Chris Hadfield, perform for 20,000 attendees at the inaugural WE Day Family in Toronto at the Air Canada Centre on October 19, 2016. Photo Credit: Maria Gagliardi for WE Day

Paula Abdul shared her story of achieving her dream to be a dancer and a choreographer, cleaning a dance studio in exchange for lessons and not letting her petite physique keep her from mastering the grace of ballet. Now she is a WE Ambassador and has traveled to Kenya.  Her message was about taking action to achieve your goals, which really resonated with my daughter (who dreams of Broadway).

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Yes, she is the nicest celebrity you’ll ever meet!

WHY Should WE Get Involved With WE.org?

If you need a reason to get involved as a family, studies have shown that by engaging your children in WE Movement charities “youth experience profound academic and professional growth and develop critical 21st century skills, including leadership skills, as well as collaboration, communication, and problem-solving skills, all of which contribute to creating better prepared students and job candidates.”

By living “WE” at home, families learn how to make a difference through their everyday actions. Families bond over causes that matter to them, and raise children who become caring and compassionate adults.

HOW Can WE help?

If you only do one thing today, take a minute and join the WE movement, visit WE.org and take the WE pledge. $10 will be donated for every pledge taken, up to $1 Million dollars will be donated to support charitable domestic empowerment programs and sustainable development programs in communities oversees.

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TAKE ACTION: WE Scare Hunger Campaign

One of the action campaigns my Tween wants us to take on as a WE Day Family, is called “WE Scare Hunger.” With materials available online, we have all the resources we need to organize and collect food for our local food bank on Halloween. A few days before Halloween, we will be delivering notes to our neighbours, so they can be ready for us to collect non-perishable donations for the food bank when we visit them for Trick-or-Treat.
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This is also a great way for kids who are starting to feel a bit too old to Trick-or-Treat to stay involved with the Halloween fun!

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We Day Family was proudly sponsored by RBC. Check out their Make 150 Count campaign and share how you would use $150 to make a change!

The world needs your family! WE Hope You Will Join WE

❤ Jennpup ❤

P.S. Check out Canadian Living’s Me to We Family Award winners, the Bodanis Family here.

We send our heartfelt thanks to  Erica Ehm’s Yummy Mummy Club for tickets and Media Access to We Day Family, Toronto 2016. Thank you to Canadian Living Magazine, Craig and Mark Kielburger and the WE.org staff for an unforgettable and inspiring event! 

 

Adventures in The Deep End: Finding Dory

finding-dory
As a mom of a child with autism, I have a ready list of worries relating to him being out in the world. I recently took my eldest child to see an advance screening of Pixar’s latest release, “Finding Dory” which we both enjoyed immensely. I chose not to bring my son with autism, because an advance screening means a big crowd, long line-ups and sometimes a late start. It is potentially too overwhelming for him, so it felt safer to keep him home.

He won’t miss out – Cineplex in partnership with Autism Speaks Canada is offering a sensory friendly screening of Finding Dory on July 2nd, so my partner will take my son to see Finding Dory then, when my son can move in his seat, make noise and we can ‘relax’ that we are in an audience of people who “get it”.

But this is just one of the ways that having a child with autism impacts our family. I worry about him every time we leave the house and go out into the community, and even in the house I worry – we have baby gates and high bolts to help keep him from wandering.

I worry about how he’ll do at school, if he’ll be able to attend integrated ‘typical’ classrooms or if he’ll be separated. I worry about potential bullies and people who might harm him due to his sweet nature and trust of other people.

In “Finding Dory”, the main premise is that Dory remembers she has a family and that she misses them, so she sets out to find them. Through flashbacks we learn about her parents Jenny (Diane Keaton) and Charlie (Eugene Levy) and how they worried about Dory.  charliejennyDory suffers from Short Term Memory Loss and if she leaves home without her parents, her parents are afraid (and rightfully so) she won’t be able to make it home on her own. They practice playing ‘hide and seek’, devise a way of leaving shell paths to help Dory find her way and come up with songs and rhymes to try to help Dory retain important information so that she can be safe when away from them.  Dory wants to learn and tries to learn, but her disability prevents her from being successful. Her parents spend every day practicing these drills over and over again, not unlike how we work with our son at his IBI therapy. I can completely relate to their worry about Dory, how hard they work to try to help her and how proud they are when she accomplishes her goals.

Unfortunately, Dory’s parents fear is justified. Dory does get separated from her family, and she does encounter many dangers in the ocean, but luckily escapes harm. She meets Marlin and later Nemo, who end up taking her in to be a part of their community and family. They offer her support and patience and do what they can to keep her safe and help her be included in their community.  They accept that she can’t help but wake them up in the night and that she makes unsafe decisions, and they love her anyway.

dory marlin nemo

I hope my child with the support received in his childhood is able to be an independent adult who can find companionship and form a family of his own. I hope that he can be gainfully employed and help make the world a better place with his beautiful spirit. I worry about him and hope he makes it safely through the world into the future I dream of for him. I am hopeful that there will be community living options for him should he need them, such as those offered at the organization I work for*, and I will continue to advocate for a more inclusive world for him, not unlike the reef Dory lives in with Nemo and Marlin (her chosen family).

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In her community, Dory finds acceptance, inclusion and a feeling of independence while being supported. These are the things that help me worry less while advocating strongly so this future can be a reality for children like mine.

❤ Jennpup ❤

-*Jennifer works in KW Habilitation’s Residential Services since 2013. Her son was diagnosed at age 2 1/2 with autism and benefited from KW Habilitation’s ELCCFR Special Needs Access Point (SNAP) program which brought additional supports in to his daycare, to address his early social and communication needs, prior to and following diagnosis.

 

 

 

 

 

I took the Stayfree Challenge!

I just took the Stayfree Challenge!

Thanks to Sarah at Journeys of the Zoo I was selected to participate in the #StayfreeChallengeContest – and I was *shocked* by the results!

I received this cool test kit in the mail from Stayfree® so I could test the Stayfree® Ultra Thin® pad against my current product.

Meet the competition: I chose an Always® Radiant Infinity pad with Flexfoam.  It looks almost like a sponge and I’ve found it to be very absorbent – I thought for sure it would beat Stayfree.

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Next I was to pour 5ml of blue liquid on the centre of the Stayfree® Ultra Thin® pad, and wait 30 seconds…
IMG_8898.JPGAfter 30 seconds elapsed, I placed a blotter sheet, an acrylic sheet to protect my book – and then I had to place a heavy hardcover book on top.

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I chose Harry Potter and the Half-Blood Prince. Seemed fitting… 🙂 Then I pressed down for 5 seconds.

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After 5 seconds it was time to check the blotter paper! LOOK!!

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Well, I wasn’t actually surprised. I had seen Sarah’s results and expected the Stayfree® Ultra Thin® to pass this part of the test.  I was sure my fancy Always® pad would do *just* as well.

Next up! The COMPETITOR. Cue the Eye of the Tiger! 🙂IMG_8910.JPG

Yep, just like a sponge! It soaked up all of the liquid.  I waited 30 seconds (timed with my FitBit Charge HR) and then added the blotter sheet, acetate and same book:
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After pressing down for 5 seconds, it was time to see if my product won!
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Sorry, Charlie! Not even close! I was truly shocked!
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It wasn’t even CLOSE!

Wow! Super fun! I enjoyed sharing the results with my tween – I know we’ll be picking up some Stayfree® Ultra Thins® when it’s her turn to start using pads. We’ll both feel more secure in our new ‘pad of choice’.

Congratulations, Stayfree® Ultra Thin®!

Thanks for following my adventures!

❤ Jennpup ❤

Ontario to Deny Children with Autism over 5 Intensive Therapy

Imagine  you are a parent of a child with autism in Ontario. Three years ago your child was diagnosed with autism, and you immediately applied for an IBI (Intensive Behavioural Intervention) assessment. Your child was assessed by a team who agreed that IBI was the best therapy for your child and you were put on the wait list. Now your child just began, or is about to begin the therapy (the average wait list is 2 1/2-3 years in Ontario), but the Province decided a few weeks ago to change the rules and that your child is now considered too old and will no longer be receiving the therapy.  You will receive a one time payment of $8,000.00 (enough to purchase about 8 weeks of IBI therapy), while the average cost for one year of therapy is approximately $50,000.00.

According to the Province, this is the only solution to the wait list problem. Not increasing funding and creating more spaces, but drastically cutting funding and arbitrarily kicking children off of the wait list based on AGE and not by whether or not the therapy IS the best option for that particular child. 

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Please stand with these ‘lost children’ and ask that they receive the service promised to them when they were first diagnosed with autism and the province assessed them and deemed them in need of receiving IBI therapy.

Write to your local MPP.   Keep up the pressure! The Ontario Liberals have changed their mind on closing schools for the Deaf (crazy, right?) and cutting some prescription benefits for seniors.  Thank you to all who showed your support on Friday, April 15th at rallies held all over Ontario.

-Jennpup

Note: My child was diagnosed with autism at 2 and started IBI therapy at 4 years 9 months. Prior to the changes to IBI, we had agreed to discharge him from therapy at the end of June, to continue working on his social and communication needs within the framework of the school system. The majority of his IBI therapy happened during the year he was 5 and he made great strides thanks to this vital therapy. He is able to attend our local school and has a much greater chance at being a productive member of society thanks to the therapy he received. Please join me in standing up for the “lost children” of Ontario.